Sunday, February 1, 2009

Gracie Rose


I have a niece with a rare genetic disorder called Williams syndrome. People with WS are missing more than 20 genes on chromosome #7. Because of the Williams syndrome, Gracie Rose suffers from numerous problems, including: pulmonary stenosis, gastric reflux, digestive problems, developmental delays, hypercalcemia (elevated blood calcium levels), hyperacusis (sensitive hearing), and musculoskeletel problems. A Valentine's Day Fund Campaign has been established by the Williams Syndrome Association in order to fund research that will lead to better medical treatments and cognitive understanding of Williams syndrome. Please help our little angel on earth and all children and adults with WS by making a tax-deductible contribution to the Williams Syndrome Association. Every dollar helps! Donations can be made by phone at 1-800-806-1871 or at http://www.williams-syndrome.org/.

1 comment:

  1. Gracie,

    You beautiful baby, I need to kiss your precious little cheeks!! You can count on us Texas Lozanos to donate to your cause!

    Love,
    the Clymer kids' Nana & Poppa

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